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Embody Empathy This Pain Awareness Month

Do you embody empathy when you cross paths with others? The homeless person in the subway station carrying a backpack and all of his worldly possessions in a shopping cart.   The mother with a screaming kid in the grocery store.   The woman who parked in the handicapped space, but walked into the store unassisted.   We’ve […]

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Photo Friday – Pain Week 2017

Pain Week is an annual conference focused on pain for the health care professionals who see patients who have a multitude of disorders and diseases. Doctors, pharmacologists, nurse practitioners, and those who offer complementary and alternative therapies all gather to attend seminars on the latest research in this field.   I was there to represent […]

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How to “Describe Your Typical Day” When You Have a Disability

Typical Day

It’s always scary to get an envelope in the mail from the Social Security Disability office. Recently, one of those showed up in my mailbox. It was time to recertify my disability. It’s been three years since I was awarded benefits. The Social Security Administration has the following guidelines on when and how often someone […]

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Why Being “Disabled” is a Full-Time Job

Disability Job Application

*************************SEEKING APPLICANTS************************* Job Title Chief Medical Officer of Personal Health Affairs (AKA Social Security Disability Beneficiary) Job Description Full-time position, flexible hours. Prerequisite: Ideal candidate would have a background in all of the following areas: analytics, accounting, patient advocacy, medical billing, insurance underwriting, legalese, pharmacology, healthcare administration, Social Security Disability, Medicare & Medicaid. Preference for […]

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Photo Friday – Past 5 Weeks of Travel

Travel and Migraine

Today, I’m getting on a plane from DC back to LA. The past 5 weeks have been filled with conferences, interviews, writing, education, planning, advocacy and lots of travel. I had a friend ask me how I travel so much with such debilitating chronic migraine? My response was: If there’s something really important to me, […]

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Migraine Takes. But It Also Gives Sometimes.

Migraine Takes

My eyes were full of tears so many times in June for different reasons. Sometimes because of my own pain, but more often due to the stories of others that I have had the privileged to know. I’ve seen the despair of a life with migraine disease, robbing those of the future they had envisioned. […]

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The INvisible Project – Migraine Edition

You may have seen me post about the Invisible Project, but I don’t think I’ve taken the time to explain it. It’s a magazine that highlights the lives of those LIVING with chronic pain and tells their stories, emphasizing pictures from their personal archives. The main purpose is to make the invisible more visible. The […]

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