Hot Off the Presses! Welcome to Golden Graine! The name of my blog is a play on my last name and slang for migraine (so don’t forget the “e” at the end of ‘Graine). When I had to stop working at the age of 32 due to intractable chronic migraine disease, I found purpose in […]
I found this is a cute little store in Philly. Truer words never spoken. When I was still working in an office, they had to disable the automatic lighting and I brought in lamps. Although everyone with migraine disease has the legal right to ask for workplace accommodations for their condition, not every company is […]
I’ve gotten so much positive response and questions about Headache on the Hill, that I thought I’d share details on how you can still be part of this advocacy event for 2017 and how to get involved next year. Our Mission The goal of Headache on the Hill is for patients, caregivers, researchers and headache […]
My dear friend and fellow writer for Migraine.com, Lisa Benson, was the first one to answer my call to share art that depicts illness and pain.
Shown here are my fellow Headache on the Hill participants as we talk to a staffer from Congressman Don Beyers office from VA. I was so incredibly proud of how well our group was able to mesh together to get our message across. Two of us had chronic migraine, one had cluster headache, two were […]
Yesterday, I attended the 10th Annual Headache on the Hill. Organized by the Alliance for Headache Disorders Advocacy (http://allianceforheadacheadvocacy.org/headache-on-the-hill), over 100 patients, doctors and caregivers descended upon Capitol Hill to lobby for migraine research. We met with the offices of Senators and Congressman throughout the day to show how incredibly underfunded this disease is compared […]
This is the last installment in a 3-part series on dealing with one particular medical bill. Update 9/11/2015 With the last phone call, I forgot to set up a payment plan. In the meantime, I had gotten a collection notice for this bill. Damn it. From previously working in banking, I do know that it […]
This picture was taken last year at Headache on the Hill, an annual lobbying event on Capitol Hill for migraine research. This coming Monday and Tuesday will be the 10th year advocates, patients, caregivers and headache specialists will descend upon the Hill to make sure our voice is heard.
At My Tallest The beginning of my day starts when Archer leaves for work around 9am to brave the LA traffic. Although I just want to crawl back into bed, I start my day with a smoothie. I sit on the balcony just to double check the ocean is still there (my fantasy land of […]
This is the second post on a 3-Part Series, dealing with one particular medical bill. Called 9/8– I now had the information the last person asked for. It was on their website. I mean, if I can access it via their website, shouldn’t they be able to find it? There were 3 fairly large charges […]
I have a special connection in so many ways to Georgetown University and its Hospital.