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My Voice

My open journal of my thoughts, ideas, struggles and triumphs in dealing with chronic migraine disease and chronic pain.

Why Being “Disabled” is a Full-Time Job

Disability Job Application

*************************SEEKING APPLICANTS************************* Job Title Chief Medical Officer of Personal Health Affairs (AKA Social Security Disability Beneficiary) Job Description Full-time position, flexible hours. Prerequisite: Ideal candidate would have a background in all of the following areas: analytics, accounting, patient advocacy, medical billing, insurance underwriting, legalese, pharmacology, healthcare administration, Social Security Disability, […]

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Migraine Takes. But It Also Gives Sometimes.

Migraine Takes

My eyes were full of tears so many times in June for different reasons. Sometimes because of my own pain, but more often due to the stories of others that I have had the privileged to know. I’ve seen the despair of a life with migraine disease, robbing those of […]

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Handy Guide to All Things Migraine & Headache Awareness Month

Migraine Awareness Month

Curated by Michelle Tracy and Katie M. Golden June is Migraine and Headache Awareness Month #MHAM. There is so much excitement in the air about many great campaigns, it can get a little confusing. The Migraine Warrior, Michelle Tracy, @chedeco, and Katie M. Golden, @GoldenGraine, have teamed up to break […]

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Professional Patient: Skills Learned from Living with a Chronic Disease

Titles for patients

My business card says “Professional Patient.” I get so many questions about this. What does that mean exactly? To me, I have acquired skills and knowledge that “healthy people” don’t have. Having chronic migraine and pain has exposed me to situations that many others never have to face. When your […]

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