Yesterday, I attended the 10th Annual Headache on the Hill. Organized by the Alliance for Headache Disorders Advocacy (http://allianceforheadacheadvocacy.org/headache-on-the-hill), over 100 patients, doctors and caregivers descended upon Capitol Hill to lobby for migraine research. We met with the offices of Senators and Congressman throughout the day to show how incredibly underfunded this disease is compared […]
This is the last installment in a 3-part series on dealing with one particular medical bill. Update 9/11/2015 With the last phone call, I forgot to set up a payment plan. In the meantime, I had gotten a collection notice for this bill. Damn it. From previously working in banking, I do know that it […]
This picture was taken last year at Headache on the Hill, an annual lobbying event on Capitol Hill for migraine research. This coming Monday and Tuesday will be the 10th year advocates, patients, caregivers and headache specialists will descend upon the Hill to make sure our voice is heard.
At My Tallest The beginning of my day starts when Archer leaves for work around 9am to brave the LA traffic. Although I just want to crawl back into bed, I start my day with a smoothie. I sit on the balcony just to double check the ocean is still there (my fantasy land of […]
This is the second post on a 3-Part Series, dealing with one particular medical bill. Called 9/8– I now had the information the last person asked for. It was on their website. I mean, if I can access it via their website, shouldn’t they be able to find it? There were 3 fairly large charges […]
I have a special connection in so many ways to Georgetown University and its Hospital.
My dad gets ocular or retinal migraine attacks. He gets a visual aura that lasts 15-20 minutes and then he doesn’t get the head pain. Oddly, his attacks started after I became chronic.
This picture is being sold as part of a fundraising effort between the US PainFoundation and 540WMain, a non-profit run by my dear friend Calvin Eaton in Rochester, NY. Learn more about this project and how to purchase artwork by those who have chronic pain conditions.
I took this video a few days after coming home from 6 days in the hospital. I’ve had a really hard time recovering although the ketamine treatment tends to decrease the frequency and intensity of my migraine attacks. Sometimes you just gotta cry it out.
Obsessing over Broadway musicals, creating a newsletter for my 5th grade class, writing an essay that won me a scholarship to a summer theatre camp at age 8, taking private vocal lessons, consistently writing personal diaries from the 2nd grade to the present, being a member of multiple award-winning show choirs, acapella and madrigal groups, […]