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Headache Camp and the use of Medical Ketamine
Medical ketamine infusions have been the basis of my chronic migraine treatment plan since 2013. I fondly refer to the Jefferson Headache Clinic (part of Thomas Jefferson University) as “Headache Camp.” I’ve compiled every interview, podcast, and article I’ve written on my experience. And yes, I do still travel to Philadelphia at least once a…
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How Migraine has Prepped Me for this Pandemic
I have unabashedly said, “I wish everyone had a migraine attack once.” In some twisted way, the coronavirus pandemic is doing just this. The entire world has just been hit, in a sense, by a migraine pandemic You wanna know why I wish every single person experiences a full-body, four-phased, 72-hour migraine attack? Because…
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International Overdose Awareness Day
Today, August 31, is International Overdose Awareness Day (IOAD). Started by an organization in Australia in 2001, this is a day to not only remember those lost to overdose, but also to educate. “The tragedy of overdose death is preventable and more must be done to save lives,” says the Penington Institute who started this initiative.
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Real News on CGRP Access
Aimovig, the first CGRP inhibitor drug, was approved by the FDA on May 17, 2018. This is extremely exciting news, but there are a lot of questions swirling around as many of us are anxious to try this new medicine. For the most up-to-date information about Aimovig visit Aimovig.com. The site includes Frequently Asked Questions, information…
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My 2nd ICER Submission for CGRP Review
To find out more about ICER (Institute for Clinical & Economic Review) watch this video or check out the Patient Input Guide. This is my submission to ICER about the importance their review of new CGRP inhibitor drugs will have on my life and our entire community. -Katie ICER OPEN COMMENT PERIOD ON CGRP INHIBITORS…
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Celebrating Scott’s Sobriety
Addiction is a disease. It affects the addict as well as their family and friends. Those with an addiction, whether to alcohol, drugs, or other vices, will always face these demons. As much as those who love the addict want to help, it is the addict who must be willing to face the disease and…
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I Have to Honor Your Pain and You Have to Honor Mine
I had the opportunity to sit down with author, Ashley Hattle who just wrote the book, Cluster Headaches: A Guide to Surviving One of the Most Painful Conditions Known to Man. Ashley has cluster headaches and I have migraine attacks. Neither of us truly know what the other person goes through, yet we found so…
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Photo Friday – Portrait of Sick Aunt Katie
This week, most of my posts have been about kids. I wrote about a great children’s book, Noah the Narwhal: A Tale of Downs and Ups. I shared an old article, called The Kid Conundrum about my decision on having children of my own. And now I want to share a picture that was drawn…
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Noah the Narwhal Explains the Downs and Ups of Living with a Chronic Illness
“You sleep a lot.” A couple times a year, I get to see close friends who live in Boston. They have three funny, smart and talented girls all under the age of nine. Some visits I can be very interactive, playing board games, going to the beach or putting on talent shows. Other times I…
Read More Noah the Narwhal Explains the Downs and Ups of Living with a Chronic Illness
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Migraine Patient Input for ICER Report – My Submission
Introduction I wanted to share my response to the ICER patient input questions. I definitely went into a lot of detail. Please do not feel you need write a book. The questions that are the most important to focus on are #1, #2, #4, #5, & #7. It’s ok to leave questions blank. To learn…
Read More Migraine Patient Input for ICER Report – My Submission
Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.
