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My 2nd ICER Submission for CGRP Review
To find out more about ICER (Institute for Clinical & Economic Review) watch this video or check out the Patient Input Guide. This is my submission to ICER about the importance their review of new CGRP inhibitor drugs will have on my life and our entire community. -Katie ICER OPEN COMMENT PERIOD ON CGRP INHIBITORS…
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Celebrating Scott’s Sobriety
Addiction is a disease. It affects the addict as well as their family and friends. Those with an addiction, whether to alcohol, drugs, or other vices, will always face these demons. As much as those who love the addict want to help, it is the addict who must be willing to face the disease and…
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I Have to Honor Your Pain and You Have to Honor Mine
I had the opportunity to sit down with author, Ashley Hattle who just wrote the book, Cluster Headaches: A Guide to Surviving One of the Most Painful Conditions Known to Man. Ashley has cluster headaches and I have migraine attacks. Neither of us truly know what the other person goes through, yet we found so…
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Photo Friday – Portrait of Sick Aunt Katie
This week, most of my posts have been about kids. I wrote about a great children’s book, Noah the Narwhal: A Tale of Downs and Ups. I shared an old article, called The Kid Conundrum about my decision on having children of my own. And now I want to share a picture that was drawn…
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Noah the Narwhal Explains the Downs and Ups of Living with a Chronic Illness
“You sleep a lot.” A couple times a year, I get to see close friends who live in Boston. They have three funny, smart and talented girls all under the age of nine. Some visits I can be very interactive, playing board games, going to the beach or putting on talent shows. Other times I…
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Migraine Patient Input for ICER Report – My Submission
Introduction I wanted to share my response to the ICER patient input questions. I definitely went into a lot of detail. Please do not feel you need write a book. The questions that are the most important to focus on are #1, #2, #4, #5, & #7. It’s ok to leave questions blank. To learn…
Read More Migraine Patient Input for ICER Report – My Submission
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Can We Talk About Health Care For a Minute?
Can we talk about health care for a minute? I know, there’s been so much political discussion about it that it is so hard to figure out what’s going on. I’m not going to go into any of that because it’s irrelevant. Why? Because while the new Administration and members of Congress have come up…
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Photo Friday – Miles for Migraine Philadelphia
On Saturday, Oct 7, 2017, I participated in the Miles for Migraine event in Philly. Besides volunteering, I also brought the INvisible Project: Migraine Edition display with me to share the stories of those living with migraine disease. Little did I know that I would play hostess and run around with a microphone, interviewing participants…
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Sweet Pea’s Battle with Pediatric Cancer
October is Breast Cancer Awareness Month. Football and baseball players will be wearing pink. Fundraising walks will raise millions of dollars. It’s a worthy cause. I’m happy to say that I’ve had a friend beat it twice. However, did you know that September was National Childhood Cancer Awareness Month? This year I decided I was…
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Embody Empathy This Pain Awareness Month
Do you embody empathy when you cross paths with others? The homeless person in the subway station carrying a backpack and all of his worldly possessions in a shopping cart. The mother with a screaming kid in the grocery store. The woman who parked in the handicapped space, but walked into the store unassisted. We’ve…
Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.