Photo Friday-Headache on the Hill

This picture was taken last year at Headache on the Hill, an annual lobbying event on Capitol Hill for migraine research. This coming Monday and Tuesday will be the 10th year advocates, patients, caregivers and headache specialists will descend upon the Hill to make sure our voice is heard.

Pictured with me are Dr. Carrie Doherty, Senator Tim Kaine (D-VA), Dr. Mahan Chehrenama. Little did we know that a few months later the Senator would be named as a vice presidential running mate. Dr. Doherty and Dr. Chehrenama are perfect partners to stomp with. As the day gets later and I’m on my fifth meeting, they can tell when my brain hurts and step in at the perfect time if I get tongue-tied.

 

 

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The INvisible Project – Migraine Edition

June 28, 2017

You may have seen me post about the Invisible Project, but I don’t think I’ve taken the time to explain it. It’s a magazine that highlights the lives of those LIVING with chronic pain and tells their stories, emphasizing pictures from their personal archives. The main purpose is to make the invisible more visible. The…

Photo Friday- Honoring a Friend

March 3, 2017

Being 3,000 miles across the country when I heard of my dear friend’s passing last week has been extremely hard on me. I’ll return back east in a couple of weeks where we will gather to celebrate his life. Ross struggled with drug addiction, in the end losing the battle. I’ve felt so isolated from…

Advocate on the Loose!

April 5, 2017

I’m on a plane home to LA reflecting on the last three weeks I spent on the east coast. Several opportunities came my way and of course it all happened at the same time! I am grateful I was asked to be part of events focused on community building, advocacy, education and collaboration.

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