Photo Fridays- Advocates in Action

Shown here are my fellow Headache on the Hill participants as we talk to a staffer from Congressman Don Beyers office from VA. I was so incredibly proud of how well our group was able to mesh together to get our message across. Two of us had chronic migraine, one had cluster headache, two were caregivers and one a headache specialist.

I have to boast about my friend Monica who had asked me months prior if she could go with me to Headache on the Hill.

She’s only experienced one migraine in her life. After her second son was born she had excruciating head pain that would only improve if she laid down. After five days of agony it was discovered that she had a lumbar puncture from the epidural she was given during childbirth. Spinal fluid was slowly leaking out, causing this migraine attack. The cure was for her doctor to perform a blood patch in order to stop the leak. While the experience was incredibly painful, Monica told me that the silver lining was that she could relate more to what I was going through.

As someone I consider a caregiver to me, she was able to tell staffers on Capitol Hill what extreme impact chronic migraine has had on my life. She’s known me before and after I became chronic. I am truly blessed to have her in life as well as a host of other family and friends who are sensitive to my condition. I know that this is a luxury many others in my shoes do not have.

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Creative Corner: Raising Awareness of Cluster Through Arte Cluster

April 28, 2017

Arte Cluster is a project founded to raise awareness of cluster headache through art. Arte Cluster Project is an independent project founded and managed by Claudio Geraci, a chronic sufferer, and Francisca Mesa, a supporter.

My 2nd ICER Submission for CGRP Review

May 8, 2018

To find out more about ICER (Institute for Clinical & Economic Review) watch this video or check out the Patient Input Guide. This is my submission to ICER about the importance their review of new CGRP inhibitor drugs will have on my life and our entire community. -Katie ICER OPEN COMMENT PERIOD ON CGRP INHIBITORS…

Photo Friday- Warrior

March 10, 2017

This week, I got to watch one of my oldest and dearest friends compete on American Ninja Warrior! If you aren’t familiar with the show, it’s an individual race through an extremely difficult obstacle course. To be successful, one has to have incredible grip strength, endurance, flexibility, strength, balance and focus. All things that Bobby…

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