Photo Fridays- Advocates in Action

Shown here are my fellow Headache on the Hill participants as we talk to a staffer from Congressman Don Beyers office from VA. I was so incredibly proud of how well our group was able to mesh together to get our message across. Two of us had chronic migraine, one had cluster headache, two were caregivers and one a headache specialist.

I have to boast about my friend Monica who had asked me months prior if she could go with me to Headache on the Hill.

She’s only experienced one migraine in her life. After her second son was born she had excruciating head pain that would only improve if she laid down. After five days of agony it was discovered that she had a lumbar puncture from the epidural she was given during childbirth. Spinal fluid was slowly leaking out, causing this migraine attack. The cure was for her doctor to perform a blood patch in order to stop the leak. While the experience was incredibly painful, Monica told me that the silver lining was that she could relate more to what I was going through.

As someone I consider a caregiver to me, she was able to tell staffers on Capitol Hill what extreme impact chronic migraine has had on my life. She’s known me before and after I became chronic. I am truly blessed to have her in life as well as a host of other family and friends who are sensitive to my condition. I know that this is a luxury many others in my shoes do not have.

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Photo Friday- Painsomnia and Writing

May 5, 2017

I spent a large portion of March traveling. I found myself in many different hotels. I had trouble sleeping. I was exhausted, but stayed up late too many nights, writing to keep my mind off the pain. Late night is actually when I feel most creative. The street lights from Vermont Ave off of Thomas…

Photo Friday – Portrait of Sick Aunt Katie

December 8, 2017

This week, most of my posts have been about kids. I wrote about a great children’s book, Noah the Narwhal: A Tale of Downs and Ups. I shared an old article, called The Kid Conundrum about my decision on having children of my own. And now I want to share a picture that was drawn…

How to “Describe Your Typical Day” When You Have a Disability

September 6, 2017

It’s always scary to get an envelope in the mail from the Social Security Disability office. Recently, one of those showed up in my mailbox. It was time to recertify my disability. It’s been three years since I was awarded benefits. The Social Security Administration has the following guidelines on when and how often someone…

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