Photo Fridays- Advocates in Action

Shown here are my fellow Headache on the Hill participants as we talk to a staffer from Congressman Don Beyers office from VA. I was so incredibly proud of how well our group was able to mesh together to get our message across. Two of us had chronic migraine, one had cluster headache, two were caregivers and one a headache specialist.

I have to boast about my friend Monica who had asked me months prior if she could go with me to Headache on the Hill.

She’s only experienced one migraine in her life. After her second son was born she had excruciating head pain that would only improve if she laid down. After five days of agony it was discovered that she had a lumbar puncture from the epidural she was given during childbirth. Spinal fluid was slowly leaking out, causing this migraine attack. The cure was for her doctor to perform a blood patch in order to stop the leak. While the experience was incredibly painful, Monica told me that the silver lining was that she could relate more to what I was going through.

As someone I consider a caregiver to me, she was able to tell staffers on Capitol Hill what extreme impact chronic migraine has had on my life. She’s known me before and after I became chronic. I am truly blessed to have her in life as well as a host of other family and friends who are sensitive to my condition. I know that this is a luxury many others in my shoes do not have.

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“Caged” by Lisa Benson

March 14, 2017

“Caged” by Lisa Benson This self portrait is the tragically beautiful work of Lisa Benson, who is also a writer for Migraine.com. This is the second piece Lisa generously shared with Golden Graine in the Creative Corner.

Professional Patient: Skills Learned from Living with a Chronic Disease

April 19, 2017

My business card says “Professional Patient.” I get so many questions about this. What does that mean exactly? To me, I have acquired skills and knowledge that “healthy people” don’t have. Having chronic migraine and pain has exposed me to situations that many others never have to face. When your health turns suddenly, a lot…

The INvisible Project – Migraine Edition

June 28, 2017

You may have seen me post about the Invisible Project, but I don’t think I’ve taken the time to explain it. It’s a magazine that highlights the lives of those LIVING with chronic pain and tells their stories, emphasizing pictures from their personal archives. The main purpose is to make the invisible more visible. The…

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