Photo Fridays- Advocates in Action
Shown here are my fellow Headache on the Hill participants as we talk to a staffer from Congressman Don Beyers office from VA. I was so incredibly proud of how well our group was able to mesh together to get our message across. Two of us had chronic migraine, one had cluster headache, two were caregivers and one a headache specialist.
I have to boast about my friend Monica who had asked me months prior if she could go with me to Headache on the Hill.
She’s only experienced one migraine in her life. After her second son was born she had excruciating head pain that would only improve if she laid down. After five days of agony it was discovered that she had a lumbar puncture from the epidural she was given during childbirth. Spinal fluid was slowly leaking out, causing this migraine attack. The cure was for her doctor to perform a blood patch in order to stop the leak. While the experience was incredibly painful, Monica told me that the silver lining was that she could relate more to what I was going through.
As someone I consider a caregiver to me, she was able to tell staffers on Capitol Hill what extreme impact chronic migraine has had on my life. She’s known me before and after I became chronic. I am truly blessed to have her in life as well as a host of other family and friends who are sensitive to my condition. I know that this is a luxury many others in my shoes do not have.
I have a special connection in so many ways to Georgetown University and its Hospital.
A couple of years ago, Archer and I visited friends in New Mexico. On a quick trip from Albuquerque to Santa Fe, we stopped to walk across this bridge that had such an incredible view. However, there were reminders everywhere that tragedy befalls this landmark often. Since May is Mental Health Awareness Month, I thought…
I find it important to share the trials and struggles of dealing with insurance companies and doctor bills. It can become a job in and of itself. For those in chronic pain, we only have so much energy to deal with this crap. I feel like they assume you’re not going to fight them and…