Photo Friday- Painsomnia and Writing

I spent a large portion of March traveling. I found myself in many different hotels. I had trouble sleeping. I was exhausted, but stayed up late too many nights, writing to keep my mind off the pain. Late night is actually when I feel most creative. The street lights from Vermont Ave off of Thomas Circle had this amazing glow. It gave me a great reprieve from the harsh lights of conference rooms. Setting the perfect ambiance to sort all of my jumbled thoughts onto paper.

Painsomnia is a perfect term to describe why I’m in pain and can’t sleep. I find solace in creating. It can help take my mind off the pain. It can also create bad sleeping patterns. Now that I’m home, I’m working on being more consistent with sleep. It’s probably one of my biggest areas for improvement.

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Photo Friday – Past 5 Weeks of Travel

July 14, 2017

Today, I’m getting on a plane from DC back to LA. The past 5 weeks have been filled with conferences, interviews, writing, education, planning, advocacy and lots of travel. I had a friend ask me how I travel so much with such debilitating chronic migraine? My response was: If there’s something really important to me,…

Questions on CGRP

Real News on CGRP Access

May 22, 2018

Aimovig, the first CGRP inhibitor drug, was approved by the FDA on May 17, 2018. This is extremely exciting news, but there are a lot of questions swirling around as many of us are anxious to try this new medicine. For the most up-to-date information about Aimovig visit Aimovig.com. The site includes Frequently Asked Questions, information…

Embody Empathy This Pain Awareness Month

September 13, 2017

Do you embody empathy when you cross paths with others? The homeless person in the subway station carrying a backpack and all of his worldly possessions in a shopping cart. The mother with a screaming kid in the grocery store. The woman who parked in the handicapped space, but walked into the store unassisted. We’ve…

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