My eyes were full of tears so many times in June for different reasons. Sometimes because of my own pain, but more often due to the stories of others that I have had the privileged to know. I’ve seen the despair of a life with migraine disease, robbing those of the future they had envisioned. Lost with what to do next. I got messages from many who were preparing to enter the hospital, full of questions and anxiety over the unknown. Upon hearing of a suicide in the cluster community, I felt utter despair for the family and a sense my own powerlessness.
I also saw people connect in different ways in the name of migraine awareness. My Facebook feed was inundated with people (and dogs) wearing #shadesformigraine or #haturdayforheadaches. I watched the brightest minds in headache medicine present their research, making me hopeful for the future. I saw the eyes of medical students widen with new compassion after hearing the personal of accounts of those living with chronic pain conditions. I connected with new organizations dedicated to fighting for migraine. I got to share the stories of others who fight every day to live a fulfilled life. I had the chance to meet more of my online family in person, which is such a special treat! And I connected with old friends, choosing to laugh at how ridiculously similar our migraine lives are.
Migraine takes. But it also gives sometimes.
Since its inception, I’ve received insurance through the Affordable Care Act. It was enacted almost at the same time the I went on disability and lost coverage under my employer. I was still in the process of applying for Social Security Disability and knew that it could be years before I was eligible for Medicare.…
Four-inch heels, power suits, cocktail dresses, regular hair and nail maintenance and appropriate make-up. That was me in the professional world. Client meetings, networking events and charity functions. They all require the professional look.
Golden Graine is not just for those living with chronic migraine, it’s for anyone dealing with chronic pain. We are all in the same boat. Feeling misunderstood, wanting others to take the time to listen. For this Medical Monday, I want to talk about a condition called Complex Regional Pain Syndrome (CRPS) or Reflex Sympathetic…