Photo Friday – Past 5 Weeks of Travel

Today, I’m getting on a plane from DC back to LA. The past 5 weeks have been filled with conferences, interviews, writing, education, planning, advocacy and lots of travel. I had a friend ask me how I travel so much with such debilitating chronic migraine? My response was:

If there’s something really important to me, I prepare. I rest. I find the strength from somewhere to push through. But I pay for it. I have a hard time saying no, but I’ve been better at picking and prioritizing what’s important. If it means that much to me, I sacrifice my health. Is that smart? No. But I want to live, not just survive. It’s worth it to me.

I realize that not everyone can travel, whether it’s for a conference or even a family vacation. I won’t pretend that my health has been great this whole time. I’ve had my struggles, sometimes spending more time in my hotel room than in seminars or skipping out early to take a nap. I have issues with let-down migraine attacks. I run on adrenaline and when it’s over, I simply crash and fall apart. Is that smart? No. But I want to live, not just survive.

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I Have to Honor Your Pain and You Have to Honor Mine

December 11, 2017

I had the opportunity to sit down with author, Ashley Hattle who just wrote the book, Cluster Headaches: A Guide to Surviving One of the Most Painful Conditions Known to Man. Ashley has cluster headaches and I have migraine attacks. Neither of us truly know what the other person goes through, yet we found so…

Medical Monday- Changing Insurance Carriers

April 3, 2017

I find it important to share the trials and struggles of dealing with insurance companies and doctor bills. It can become a job in and of itself. For those in chronic pain, we only have so much energy to deal with this crap. I feel like they assume you’re not going to fight them and…

“Almost Buried” by Lisa Benson

April 14, 2017

I’m so thrilled to share a third work of art by Lisa Benson, artist and writer for Migraine.com. Lisa says of this piece:

2 Comments

  1. Katie Golden on July 14, 2017 at 12:12 pm

    Marineparent101,
    Thanks so much for your kind words. We all have a choice whether to accept our lot in life or to be miserable. I’ve had my dark days but overall I keep a positive attitude. Wallowing doesn’t change anything.
    Glad you’re active in AHMA, such a grwat organization!
    I wish we didn’t have to go through this, but at least we’rw in good company!



  2. marineparent101 on July 14, 2017 at 10:51 am

    Katie,
    I admire your resolve, to do the things that are important to you! I can see your mantra is “I want to live, not just survive”! I truly miss the person I was before chronic migraine and other chronic pain issues I have. No, I couldn’t keep up the pace that you do, but there is an age gap, about 15 years I believe. With the chronic migraine and chronic pain, comes chronic fatigue, I’m just a chronic mess. lol
    In 2014 I found Teri’s HealthCentral Facebook page, which lead me to AHMA. I’ve had migraine since I was 16, but didn’t go chronic until 2001. So for 14yrs I navigated through chronic migraine, with no support at all. Teri’s group and AHMA changed all of that, I learned so much and made some awesome friendships.
    It also opened up a new purpose in life for me, supporting, encouraging, inspiring and advocating, for those in the migraine community. I started with Twitter in Sept. 2015 and now a blog, my horizons are expanding, and that gives me a new lease on life with chronic migraine.



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