Photo Friday – Past 5 Weeks of Travel

Today, I’m getting on a plane from DC back to LA. The past 5 weeks have been filled with conferences, interviews, writing, education, planning, advocacy and lots of travel. I had a friend ask me how I travel so much with such debilitating chronic migraine? My response was:

If there’s something really important to me, I prepare. I rest. I find the strength from somewhere to push through. But I pay for it. I have a hard time saying no, but I’ve been better at picking and prioritizing what’s important. If it means that much to me, I sacrifice my health. Is that smart? No. But I want to live, not just survive. It’s worth it to me.

I realize that not everyone can travel, whether it’s for a conference or even a family vacation. I won’t pretend that my health has been great this whole time. I’ve had my struggles, sometimes spending more time in my hotel room than in seminars or skipping out early to take a nap. I have issues with let-down migraine attacks. I run on adrenaline and when it’s over, I simply crash and fall apart. Is that smart? No. But I want to live, not just survive.

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Photo Fridays- Georgetown University Hospital

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I have a special connection in so many ways to Georgetown University and its Hospital.

Questions on CGRP

Real News on CGRP Access

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Aimovig, the first CGRP inhibitor drug, was approved by the FDA on May 17, 2018. This is extremely exciting news, but there are a lot of questions swirling around as many of us are anxious to try this new medicine. For the most up-to-date information about Aimovig visit Aimovig.com. The site includes Frequently Asked Questions, information…

How to “Describe Your Typical Day” When You Have a Disability

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It’s always scary to get an envelope in the mail from the Social Security Disability office. Recently, one of those showed up in my mailbox. It was time to recertify my disability. It’s been three years since I was awarded benefits. The Social Security Administration has the following guidelines on when and how often someone…

2 Comments

  1. Katie Golden on July 14, 2017 at 12:12 pm

    Marineparent101,
    Thanks so much for your kind words. We all have a choice whether to accept our lot in life or to be miserable. I’ve had my dark days but overall I keep a positive attitude. Wallowing doesn’t change anything.
    Glad you’re active in AHMA, such a grwat organization!
    I wish we didn’t have to go through this, but at least we’rw in good company!



  2. marineparent101 on July 14, 2017 at 10:51 am

    Katie,
    I admire your resolve, to do the things that are important to you! I can see your mantra is “I want to live, not just survive”! I truly miss the person I was before chronic migraine and other chronic pain issues I have. No, I couldn’t keep up the pace that you do, but there is an age gap, about 15 years I believe. With the chronic migraine and chronic pain, comes chronic fatigue, I’m just a chronic mess. lol
    In 2014 I found Teri’s HealthCentral Facebook page, which lead me to AHMA. I’ve had migraine since I was 16, but didn’t go chronic until 2001. So for 14yrs I navigated through chronic migraine, with no support at all. Teri’s group and AHMA changed all of that, I learned so much and made some awesome friendships.
    It also opened up a new purpose in life for me, supporting, encouraging, inspiring and advocating, for those in the migraine community. I started with Twitter in Sept. 2015 and now a blog, my horizons are expanding, and that gives me a new lease on life with chronic migraine.



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