Photo Friday – Past 5 Weeks of Travel

Today, I’m getting on a plane from DC back to LA. The past 5 weeks have been filled with conferences, interviews, writing, education, planning, advocacy and lots of travel. I had a friend ask me how I travel so much with such debilitating chronic migraine? My response was:

If there’s something really important to me, I prepare. I rest. I find the strength from somewhere to push through. But I pay for it. I have a hard time saying no, but I’ve been better at picking and prioritizing what’s important. If it means that much to me, I sacrifice my health. Is that smart? No. But I want to live, not just survive. It’s worth it to me.

I realize that not everyone can travel, whether it’s for a conference or even a family vacation. I won’t pretend that my health has been great this whole time. I’ve had my struggles, sometimes spending more time in my hotel room than in seminars or skipping out early to take a nap. I have issues with let-down migraine attacks. I run on adrenaline and when it’s over, I simply crash and fall apart. Is that smart? No. But I want to live, not just survive.

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Photo Friday: Wisdom of Crowds

August 4, 2017

I took this photo in 2015 at the offices of Health Union, the parent company of Migraine.com. I was, and still am, intrigued by the artwork of the brain made up by hands. The artwork was created with chalk on a blackboard, with incredible detail and precision. The hands represent working together, which beautifully depicts…

Creative Corner – Out of Chaos

June 2, 2017

This beautiful piece of art was created by my friend Terah. I personally gravitate towards images of trees and roots I think because it represents grounding and growth for me. I’m so excited to share her creative work. After many years in a successful career with Coca-Cola, Terah was forced to go on disability in…

Photo Friday – Miles for Migraine Philadelphia

October 13, 2017

On Saturday, Oct 7, 2017, I participated in the Miles for Migraine event in Philly. Besides volunteering, I also brought the INvisible Project: Migraine Edition display with me to share the stories of those living with migraine disease. Little did I know that I would play hostess and run around with a microphone, interviewing participants…

2 Comments

  1. Katie Golden on July 14, 2017 at 12:12 pm

    Marineparent101,
    Thanks so much for your kind words. We all have a choice whether to accept our lot in life or to be miserable. I’ve had my dark days but overall I keep a positive attitude. Wallowing doesn’t change anything.
    Glad you’re active in AHMA, such a grwat organization!
    I wish we didn’t have to go through this, but at least we’rw in good company!



  2. marineparent101 on July 14, 2017 at 10:51 am

    Katie,
    I admire your resolve, to do the things that are important to you! I can see your mantra is “I want to live, not just survive”! I truly miss the person I was before chronic migraine and other chronic pain issues I have. No, I couldn’t keep up the pace that you do, but there is an age gap, about 15 years I believe. With the chronic migraine and chronic pain, comes chronic fatigue, I’m just a chronic mess. lol
    In 2014 I found Teri’s HealthCentral Facebook page, which lead me to AHMA. I’ve had migraine since I was 16, but didn’t go chronic until 2001. So for 14yrs I navigated through chronic migraine, with no support at all. Teri’s group and AHMA changed all of that, I learned so much and made some awesome friendships.
    It also opened up a new purpose in life for me, supporting, encouraging, inspiring and advocating, for those in the migraine community. I started with Twitter in Sept. 2015 and now a blog, my horizons are expanding, and that gives me a new lease on life with chronic migraine.



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