Photo Friday – Past 5 Weeks of Travel

Today, I’m getting on a plane from DC back to LA. The past 5 weeks have been filled with conferences, interviews, writing, education, planning, advocacy and lots of travel. I had a friend ask me how I travel so much with such debilitating chronic migraine? My response was:

If there’s something really important to me, I prepare. I rest. I find the strength from somewhere to push through. But I pay for it. I have a hard time saying no, but I’ve been better at picking and prioritizing what’s important. If it means that much to me, I sacrifice my health. Is that smart? No. But I want to live, not just survive. It’s worth it to me.

I realize that not everyone can travel, whether it’s for a conference or even a family vacation. I won’t pretend that my health has been great this whole time. I’ve had my struggles, sometimes spending more time in my hotel room than in seminars or skipping out early to take a nap. I have issues with let-down migraine attacks. I run on adrenaline and when it’s over, I simply crash and fall apart. Is that smart? No. But I want to live, not just survive.

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Migraine Attack: Too Exhausted to Move

January 29, 2017

I took this video a few days after coming home from 6 days in the hospital. I’ve had a really hard time recovering although the ketamine treatment tends to decrease the frequency and intensity of my migraine attacks. Sometimes you just gotta cry it out.

Dear Congressman, Thank You For Your Vote

May 15, 2017

Last week, I wrote about the healthcare bill that passed in the House of Representatives, also known as Trumpcare. You can read it here. I challenged you to email, write or call your representative about how he or she voted and to give feedback based on their vote. I wanted to share my letter in…

Photo Fridays- Georgetown University Hospital

February 3, 2017

I have a special connection in so many ways to Georgetown University and its Hospital.

2 Comments

  1. Katie Golden on July 14, 2017 at 12:12 pm

    Marineparent101,
    Thanks so much for your kind words. We all have a choice whether to accept our lot in life or to be miserable. I’ve had my dark days but overall I keep a positive attitude. Wallowing doesn’t change anything.
    Glad you’re active in AHMA, such a grwat organization!
    I wish we didn’t have to go through this, but at least we’rw in good company!



  2. marineparent101 on July 14, 2017 at 10:51 am

    Katie,
    I admire your resolve, to do the things that are important to you! I can see your mantra is “I want to live, not just survive”! I truly miss the person I was before chronic migraine and other chronic pain issues I have. No, I couldn’t keep up the pace that you do, but there is an age gap, about 15 years I believe. With the chronic migraine and chronic pain, comes chronic fatigue, I’m just a chronic mess. lol
    In 2014 I found Teri’s HealthCentral Facebook page, which lead me to AHMA. I’ve had migraine since I was 16, but didn’t go chronic until 2001. So for 14yrs I navigated through chronic migraine, with no support at all. Teri’s group and AHMA changed all of that, I learned so much and made some awesome friendships.
    It also opened up a new purpose in life for me, supporting, encouraging, inspiring and advocating, for those in the migraine community. I started with Twitter in Sept. 2015 and now a blog, my horizons are expanding, and that gives me a new lease on life with chronic migraine.



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