Photo Friday – Portrait of Sick Aunt Katie
This week, most of my posts have been about kids. I wrote about a great children’s book, Noah the Narwhal: A Tale of Downs and Ups. I shared an old article, called The Kid Conundrum about my decision on having children of my own. And now I want to share a picture that was drawn by a special kid in my life earlier this year.
We were hanging out while his mom took his brother to the doctor. Of course, ten minutes later I got a migraine with an aura. I stayed calm, but it’s a bit hard to corral a four year old. He immediately knew I wasn’t doing well and he curled up on the couch with me and I closed my eyes as he was entranced by the movie.
I retreated to a bedroom when his mom came home. A few hours later, my little buddy came upstairs and gave me this picture. He said it was me on the couch because I was sick. Then he said I needed to come and eat to make it all better. So precious! When you think they don’t know what’s going on, they are really paying attention.
I’ve heard parents with chronic illnesses say that their kids were definitely more compassionate and understanding of others. That warms my heart and I obviously that includes kids who have awesome Aunts with chronic illnesses.
Since its inception, I’ve received insurance through the Affordable Care Act. It was enacted almost at the same time the I went on disability and lost coverage under my employer. I was still in the process of applying for Social Security Disability and knew that it could be years before I was eligible for Medicare.…
The mere thought of taking your brain into a sunny environment, filled with music, friends and acquaintances to enjoy something as simple as happy hour is overwhelming. The outside world slowly becomes a place filled with unknowns. Will my brain behave or will the combination of a screaming child, an ominous rain cloud and the…
My dad gets ocular or retinal migraine attacks. He gets a visual aura that lasts 15-20 minutes and then he doesn’t get the head pain. Oddly, his attacks started after I became chronic.