Capitol Hill

Understanding the Healthcare and Proposed Budget Plans

May 25, 2017 / 0 Comments

I’m frustrated with what’s happening on Capitol Hill. Proposed changes to healthcare and proposed budget cuts will affect millions, including you.

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Dear Congressman, Thank You For Your Vote

May 15, 2017 / 0 Comments

Last week, I wrote about the healthcare bill that passed in the House of Representatives, also known as Trumpcare. You can read it here. I challenged you to email, write or call your representative about how he or she voted and to give feedback based on their vote. I wanted to share my letter in which I thank my Congressman for his vote against AHCA. Next week, I’ll share my letter to my Senators about why they need to work across the aisles to change this bill so that it doesn’t negatively affect so many of us in the chronic pain community. Feel free to steal from my letters if you want to reach out to your member of Congress. __________________________________________________________ Dear Congressman, I am Pro-human. Pro-decency. Pro-morals. Pro-healthcare. Based on your vote against the AHCA bill, I am grateful that you are, too. For that, I want to thank…

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I am Pro-human. Pro-decency. Pro-morals. Pro-healthcare.

May 8, 2017 / 0 Comments

I am Pro-human. Pro-decency. Pro-morals. Pro-healthcare. What happened last Thursday, when the House approved the American Health Care Act (AHCA), represents none of these things. My anger doesn’t just stem from the fact that if passed by the Senate “as is” and enacted into law, it will personally affect me in regards to my pre-existing conditions. My anger lies in the injustice that could be done to millions of Americans, especially to those of you reading this because it likely will affect you, my friends in the chronic pain community. Why is Everyone Saying #ihaveapreexistingcondition ? Like many of those who voted for the AHCA law, I have not read it. After pouring over dozens of articles written by those far more intelligent than me, I have discerned that the blanket statement of “the AHCA law does not cover pre-existing conditions,” is not accurate. The nuances of the bill, however,…

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Photo Fridays- Advocates in Action

February 17, 2017 / 0 Comments

Shown here are my fellow Headache on the Hill participants as we talk to a staffer from Congressman Don Beyers office from VA. I was so incredibly proud of how well our group was able to mesh together to get our message across. Two of us had chronic migraine, one had cluster headache, two were caregivers and one a headache specialist. I have to boast about my friend Monica who had asked me months prior if she could go with me to Headache on the Hill.

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Why I’ve Come to Capitol Hill

February 15, 2017 / 0 Comments

Yesterday, I attended the 10th Annual Headache on the Hill. Organized by the Alliance for Headache Disorders Advocacy (http://allianceforheadacheadvocacy.org/headache-on-the-hill), over 100 patients, doctors and caregivers descended upon Capitol Hill to lobby for migraine research. We met with the offices of Senators and Congressman throughout the day to show how incredibly underfunded this disease is compared to the burden it places on its constituents and the economy. While some meetings only lasted 10 minutes or less, over 150 representatives were visited. I found that sharing personal stories helped to connect our audience to our disease. Sometimes it’s not always efficient to share your story as we are only one of dozens of appointments held in each office that day. We are encouraged to write our story and leave it with the staff member or representative we met with. I thought I would share my letter with you. As an advocate and…

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Katie Golden

Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.

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