Cluster Headaches

Why I’ve Come to Capitol Hill

February 15, 2017 / 0 Comments

Yesterday, I attended the 10th Annual Headache on the Hill. Organized by the Alliance for Headache Disorders Advocacy (http://allianceforheadacheadvocacy.org/headache-on-the-hill), over 100 patients, doctors and caregivers descended upon Capitol Hill to lobby for migraine research. We met with the offices of Senators and Congressman throughout the day to show how incredibly underfunded this disease is compared to the burden it places on its constituents and the economy. While some meetings only lasted 10 minutes or less, over 150 representatives were visited. I found that sharing personal stories helped to connect our audience to our disease. Sometimes it’s not always efficient to share your story as we are only one of dozens of appointments held in each office that day. We are encouraged to write our story and leave it with the staff member or representative we met with. I thought I would share my letter with you. As an advocate and…

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Katie Golden

Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.

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