Migraine Patient Input for ICER Report – My Submission

November 28, 2017 / 0 Comments

Introduction I wanted to share my response to the ICER patient input questions. I definitely went into a lot of detail. Please do not feel you need write a book. The questions that are the most important to focus on are #1, #2, #4, #5, & #7. It’s ok to leave questions blank. To learn more about the Migraine Patient Open Input period and how ICER’s review will impact access to new CGRP medications, visit The ICER form can be found here: This is our chance to be heard! But the deadline is this Thurs, Nov 30th at 5pm EST! If you want to share your responses, let me know and I’d be happy to post them there! ____________________________________________________ On which ICER report are you providing input? Erenumab for Migraine Organization (if applicable): Patient Briefly describe your disease experience, including your diagnosis, treatments you’ve used, etc. Be as…

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Professional Patient: Skills Learned from Living with a Chronic Disease

April 19, 2017 / 0 Comments

My business card says “Professional Patient.” I get so many questions about this. What does that mean exactly? To me, I have acquired skills and knowledge that “healthy people” don’t have. Having chronic migraine and pain has exposed me to situations that many others never have to face. When your health turns suddenly, a lot comes at you quickly. Questions you never thought about before. What are my treatment options? What if I can’t work? Which insurance plan is the best for me now? Where can I find support? How do I fill out this mound of paperwork, go to doctors’ appointments, keep my job and run my household at the same time?

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Medical Mondays- Changing Insurance Companies Finale

April 10, 2017 / 0 Comments

This is the last part in the crazy lengths I had to go to to fight for an insurance company to honor their word and collect money they owed me. To read the first part of this series, click here. Recap: I’ve been fighting to get reimbursed for funds I paid out of pocket for medications during the time my new insurance company took to process my application and obtain proof of insurance coverage three months late. 8/25/15- I called back because I had never gotten a phone call or received any mail regarding my last inquiry. They said I would get a call-back within 3 business days. It had now been 9 business days. I explained the situation again. I received the same rhetoric that they would only pay the contracted rate they had for each drug. Again, I explain that I would have happily given the pharmacy my…

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Photo Friday- Taxes and Deducting Medical Expenses

April 7, 2017 / 0 Comments

The deadline for filing federal and state taxes on a personal level is April 17th! I keep meticulous records of all of my expenses. As of 2013, if your medical costs are more than 10% of your Adjusted Gross Income (AGI) you can deduct them. So if you made $40,000 last year and your medical bills totaled $5,000, that’s 12.5% of your income. You can claim over 10%, so in this case you can deduct $1,000 (or 2.5% of your total medical bills), you can claim a deduction for $1,000. A deduction means more money in your pocket or less money that you will have to pay the government, depending on your situation. Thanks to @Jamie Valendy for providing this link to explain the process further:

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Hospital Bill #2

February 6, 2017 / 0 Comments

This is the second post on a 3-Part Series, dealing with one particular medical bill. Called 9/8– I now had the information the last person asked for. It was on their website. I mean, if I can access it via their website, shouldn’t they be able to find it? There were 3 fairly large charges that were getting passed on to me.

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Katie Golden

Katie is a professional patient, writer for, US Pain Ambassador, patient advocate, speaker, and freelance writer.