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I Have to Honor Your Pain and You Have to Honor Mine

December 11, 2017 / 0 Comments

I had the opportunity to sit down with author, Ashley Hattle who just wrote the book, Cluster Headaches: A Guide to Surviving One of the Most Painful Conditions Known to Man. Ashley has cluster headaches and I have migraine attacks. Neither of us truly know what the other person goes through, yet we found so many similarities. In the end all headache disease communities need to unite and support each other. A phrase that we both connect with is: I have to honor your pain and you have to honor mine. It’s that simple. It’s not a contest and we should always create a judgment free space! If you don’t experience cluster headaches or have been newly diagnosed, this is a great guide to understanding this disease. You can buy Ashley’s book on Amazon. Follow her on Facebook @Ashley S. Hattle – Author, Writer & Photographer. Ashley also hosts a…

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Migraine Patient Input for ICER Report – My Submission

November 28, 2017 / 0 Comments

Introduction I wanted to share my response to the ICER patient input questions. I definitely went into a lot of detail. Please do not feel you need write a book. The questions that are the most important to focus on are #1, #2, #4, #5, & #7. It’s ok to leave questions blank. To learn more about the Migraine Patient Open Input period and how ICER’s review will impact access to new CGRP medications, visit https://www.headachemigraineforum.org/advocacy/ The ICER form can be found here: https://icer-review.org/patient-guide-to-open-input/ This is our chance to be heard! But the deadline is this Thurs, Nov 30th at 5pm EST! If you want to share your responses, let me know and I’d be happy to post them there! ____________________________________________________ On which ICER report are you providing input? Erenumab for Migraine Organization (if applicable): Patient Briefly describe your disease experience, including your diagnosis, treatments you’ve used, etc. Be as…

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The INvisible Project – Migraine Edition

June 28, 2017 / 0 Comments

You may have seen me post about the Invisible Project, but I don’t think I’ve taken the time to explain it. It’s a magazine that highlights the lives of those LIVING with chronic pain and tells their stories, emphasizing pictures from their personal archives. The main purpose is to make the invisible more visible. The INvisible Project is the flagship program of the US Pain Foundation (go “Like” their page!). Nicole Hemmenway, VP of US Pain and Director of the Invisible Project, conceived this project with the goal of showing the real impact of chronic illness, which is not always pretty. Previous editions covered multiple chronic illnesses. This year was the first time a disease-specific magazine was produced, focusing on migraine. It launched in early June, just in time for Migraine & Headache Awareness Month. The Migraine Edition Nicole and editor Jenni Grover, of Chronic Babe, approached me late last…

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Move Against Migraine Campaign by the American Migraine Foundation

April 21, 2017 / 0 Comments

The American Migraine Foundation (AMF) has launched a new campaign called Move Against Migraine. This initiative aims to spread awareness that migraine is a disabling neurological disease. Their website says the program aims to empower individuals living with migraine to advocate for themselves, to find the support and treatment they need. Below is the Content Capsule for Move Against Migraine. You will find resources, headache specialists, treatments, and ways to connect with others who live with migraine disease. You can also become part of their Facebook group. And let’s give major kudos to the artist who captured what all of us have felt. The imagery for this campaign is tragically beautiful. #MoveAgainstMigraine      

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Photo Fridays- Migraine.com Connexion Conference

March 24, 2017 / 0 Comments

On Tuesday and Wednesday of this week, Health Union (parent company of Migraine.com) invited all the HQ staff, writers and moderators to join together for the first time at their new space in Philly. One of our co-founders said it best- “Welcome Home.” And that’s exactly what these 2 days felt like.

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Welcome to Golden Graine

December 6, 2016 / 0 Comments

Hot Off the Presses! Welcome to Golden Graine! The name of my blog is a play on my last name and slang for migraine (so don’t forget the “e” at the end of ‘Graine). When I had to stop working at the age of 32 due to intractable chronic migraine disease, I found purpose in writing. I realized there was this great big community of people who are going through the same struggle. I’ve been writing for Migraine.com, the largest online migraine community, for a few years now. This opportunity has given me so much more than I ever could have imagined. At first it was about trying to work through my own struggles in finding a cause or a miracle treatment. When I accepted that this crazy illness was going to stick around for a while, my writing began to morph into educating those who were just diagnosed. Representing…

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Katie Golden

Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.

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