Disability

My 2nd ICER Submission for CGRP Review

May 8, 2018 / 0 Comments

To find out more about ICER (Institute for Clinical & Economic Review) watch this video or check out the Patient Input Guide. This is my submission to ICER about the importance their review of new CGRP inhibitor drugs will have on my life and our entire community. -Katie ICER OPEN COMMENT PERIOD ON CGRP INHIBITORS FOR MIGRAINE I had my first migraine attack with aura at age five. My vision was obstructed by a sparkling crescent moon shape. Within 20 minutes it had disappeared. Next it felt like someone was pounding a nail into my skull, over and over again. My parents held me in their arms for hours as I screamed in pain. I became dehydrated from crying, only making the searing pain in my head worse. The daylight streaming in from the window felt like more daggers. After six hours of torture, I vomited until my stomach was…

Keep Reading...

Embody Empathy This Pain Awareness Month

September 13, 2017 / 0 Comments

Do you embody empathy when you cross paths with others? The homeless person in the subway station carrying a backpack and all of his worldly possessions in a shopping cart. The mother with a screaming kid in the grocery store. The woman who parked in the handicapped space, but walked into the store unassisted. We’ve all seen situations like this and likely judged those people. Why can’t the homeless man go to a shelter and get a job? Why isn’t that mother doing anything about the temper tantrum her four-year-old is having? That woman must be abusing the handicapped system by parking when there’s clearly nothing wrong with her. How often do you think about walking in their shoes instead of judging? If you talked to each one, you may understand that the mother in the grocery store has chronic migraine and is so exhausted that she barely had the…

Keep Reading...

How to “Describe Your Typical Day” When You Have a Disability

September 6, 2017 / 0 Comments

It’s always scary to get an envelope in the mail from the Social Security Disability office. Recently, one of those showed up in my mailbox. It was time to recertify my disability. It’s been three years since I was awarded benefits. The Social Security Administration has the following guidelines on when and how often someone would be asked to recertify their condition: If medical improvement is: “Expected,” your case will normally be reviewed within six to 18 months after your benefits start. “Possible,” your case will normally be reviewed no sooner than three years. “Not expected,” your case will normally be reviewed no sooner than seven years. I fit into the “Possible” category. I rely on these benefits and can’t afford to miss anything in this process. I spent countless hours gathering up all the information I had so there would be no doubt that my chronic migraine disease was…

Keep Reading...

Why Being “Disabled” is a Full-Time Job

July 26, 2017 / 3 Comments

*************************SEEKING APPLICANTS************************* Job Title Chief Medical Officer of Personal Health Affairs (AKA Social Security Disability Beneficiary) Job Description Full-time position, flexible hours. Prerequisite: Ideal candidate would have a background in all of the following areas: analytics, accounting, patient advocacy, medical billing, insurance underwriting, legalese, pharmacology, healthcare administration, Social Security Disability, Medicare & Medicaid. Preference for those with M.D., Ph.D., CPA, RN, NP or Esq. behind their name. Skills: The ideal candidate would be well organized, exhibit patience, possess a friendly phone manner, anticipate problems, show initiative, diligent in finding correct answers and keep meticulous notes. Job Duties May Include: Schedule, prep and arrange transportation for 1-3 doctors’ visits per month. To include compiling a list of questions, a list of medications, changes in symptoms and provide medical records from other healthcare providers Interpret insurance policies and medical billing codes Reconcile medical bills Track payments toward deductibles Inquire about incorrect medical…

Keep Reading...

My Favorite Articles as a Migraine Writer – Part Four

June 26, 2017 / 0 Comments

In less than 4 years, I’ve written over 100 articles sharing my world with chronic migraine disease & pain. For migraine awareness month, here are my favs. June is Migraine and Headache Awareness Month, so I thought I’d share with you the ones that have meant the most to me. Images of an Invisible Illness Disability Income Preparation Guide Botox Basics

Keep Reading...

Creative Corner – Out of Chaos

June 2, 2017 / 0 Comments

This beautiful piece of art was created by my friend Terah. I personally gravitate towards images of trees and roots I think because it represents grounding and growth for me. I’m so excited to share her creative work. After many years in a successful career with Coca-Cola, Terah was forced to go on disability in 2011 with chronic daily migraine. She began getting migraines at age 15 and they became chronic in roughly 2002 and then daily in 2006. She now spends good days working on the crafty things she enjoys the most, art and music. This is what Terah has to say about her beautiful creation: This piece holds a great deal of sentiment for me. The roots represent the physical and emotional pain that I felt in my life at the time I conceived the initial drawing of this tree, which coincided exactly with leaving the job and…

Keep Reading...

Understanding the Healthcare and Proposed Budget Plans

May 25, 2017 / 0 Comments

I’m frustrated with what’s happening on Capitol Hill. Proposed changes to healthcare and proposed budget cuts will affect millions, including you.

Keep Reading...

Photo Friday- Fluorescent Lighting=Hell

February 24, 2017 / 0 Comments

I found this is a cute little store in Philly. Truer words never spoken. When I was still working in an office, they had to disable the automatic lighting and I brought in lamps. Although everyone with migraine disease has the legal right to ask for workplace accommodations for their condition, not every company is as understanding. I was lucky to have an office with no window. It’s harder to make such changes of fluorescent lighting out in cubeville.

Keep Reading...
Katie Golden

Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.

Archives