Insurance

Questions on CGRP

Real News on CGRP Access

May 22, 2018 / 0 Comments

Aimovig, the first CGRP inhibitor drug, was approved by the FDA on May 17, 2018. This is extremely exciting news, but there are a lot of questions swirling around as many of us are anxious to try this new medicine. For the most up-to-date information about Aimovig visit Aimovig.com. The site includes Frequently Asked Questions, information on how the drug works, safety information AND information about a co-pay assistance program and a two-month free trial program. Worried About Access To CGRP Inhibitors? Many patient groups are working to address anticipated access issues to this new medication, including how to get a prescription from your doctor and to how to get your insurance company to cover it. However, these questions won’t be answered overnight.  You are not alone and you deserve access to care that is appropriate for the disease you have. The information below may answer some of your immediate questions, guide…

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My 2nd ICER Submission for CGRP Review

May 8, 2018 / 0 Comments

To find out more about ICER (Institute for Clinical & Economic Review) watch this video or check out the Patient Input Guide. This is my submission to ICER about the importance their review of new CGRP inhibitor drugs will have on my life and our entire community. -Katie ICER OPEN COMMENT PERIOD ON CGRP INHIBITORS FOR MIGRAINE I had my first migraine attack with aura at age five. My vision was obstructed by a sparkling crescent moon shape. Within 20 minutes it had disappeared. Next it felt like someone was pounding a nail into my skull, over and over again. My parents held me in their arms for hours as I screamed in pain. I became dehydrated from crying, only making the searing pain in my head worse. The daylight streaming in from the window felt like more daggers. After six hours of torture, I vomited until my stomach was…

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Migraine Patient Input for ICER Report – My Submission

November 28, 2017 / 0 Comments

Introduction I wanted to share my response to the ICER patient input questions. I definitely went into a lot of detail. Please do not feel you need write a book. The questions that are the most important to focus on are #1, #2, #4, #5, & #7. It’s ok to leave questions blank. To learn more about the Migraine Patient Open Input period and how ICER’s review will impact access to new CGRP medications, visit https://www.headachemigraineforum.org/advocacy/ The ICER form can be found here: https://icer-review.org/patient-guide-to-open-input/ This is our chance to be heard! But the deadline is this Thurs, Nov 30th at 5pm EST! If you want to share your responses, let me know and I’d be happy to post them there! ____________________________________________________ On which ICER report are you providing input? Erenumab for Migraine Organization (if applicable): Patient Briefly describe your disease experience, including your diagnosis, treatments you’ve used, etc. Be as…

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Can We Talk About Health Care For a Minute?

November 10, 2017 / 0 Comments

Can we talk about health care for a minute? I know, there’s been so much political discussion about it that it is so hard to figure out what’s going on. I’m not going to go into any of that because it’s irrelevant. Why? Because while the new Administration and members of Congress have come up with numerous changes to the Affordable Care Act (aka Obamacare), but nothing new has been passed into law. Bottom line is that the same rules apply as when it was enacted in 2014. Why Pay Attention? I bring this up because it’s open enrollment time. Through December 15th, if your state participates in the healthcare exchange, you can sign up or change your current plan. Let’s talk basics first. If you have health insurance coverage through your employer, this doesn’t pertain to you (but it could to someone you know, so don’t stop reading!). If…

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Understanding the Healthcare and Proposed Budget Plans

May 25, 2017 / 0 Comments

I’m frustrated with what’s happening on Capitol Hill. Proposed changes to healthcare and proposed budget cuts will affect millions, including you.

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Dear Congressman, Thank You For Your Vote

May 15, 2017 / 0 Comments

Last week, I wrote about the healthcare bill that passed in the House of Representatives, also known as Trumpcare. You can read it here. I challenged you to email, write or call your representative about how he or she voted and to give feedback based on their vote. I wanted to share my letter in which I thank my Congressman for his vote against AHCA. Next week, I’ll share my letter to my Senators about why they need to work across the aisles to change this bill so that it doesn’t negatively affect so many of us in the chronic pain community. Feel free to steal from my letters if you want to reach out to your member of Congress. __________________________________________________________ Dear Congressman, I am Pro-human. Pro-decency. Pro-morals. Pro-healthcare. Based on your vote against the AHCA bill, I am grateful that you are, too. For that, I want to thank…

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I am Pro-human. Pro-decency. Pro-morals. Pro-healthcare.

May 8, 2017 / 0 Comments

I am Pro-human. Pro-decency. Pro-morals. Pro-healthcare. What happened last Thursday, when the House approved the American Health Care Act (AHCA), represents none of these things. My anger doesn’t just stem from the fact that if passed by the Senate “as is” and enacted into law, it will personally affect me in regards to my pre-existing conditions. My anger lies in the injustice that could be done to millions of Americans, especially to those of you reading this because it likely will affect you, my friends in the chronic pain community. Why is Everyone Saying #ihaveapreexistingcondition ? Like many of those who voted for the AHCA law, I have not read it. After pouring over dozens of articles written by those far more intelligent than me, I have discerned that the blanket statement of “the AHCA law does not cover pre-existing conditions,” is not accurate. The nuances of the bill, however,…

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Professional Patient: Skills Learned from Living with a Chronic Disease

April 19, 2017 / 0 Comments

My business card says “Professional Patient.” I get so many questions about this. What does that mean exactly? To me, I have acquired skills and knowledge that “healthy people” don’t have. Having chronic migraine and pain has exposed me to situations that many others never have to face. When your health turns suddenly, a lot comes at you quickly. Questions you never thought about before. What are my treatment options? What if I can’t work? Which insurance plan is the best for me now? Where can I find support? How do I fill out this mound of paperwork, go to doctors’ appointments, keep my job and run my household at the same time?

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Medical Mondays- Changing Insurance Companies Finale

April 10, 2017 / 0 Comments

This is the last part in the crazy lengths I had to go to to fight for an insurance company to honor their word and collect money they owed me. To read the first part of this series, click here. Recap: I’ve been fighting to get reimbursed for funds I paid out of pocket for medications during the time my new insurance company took to process my application and obtain proof of insurance coverage three months late. 8/25/15- I called back because I had never gotten a phone call or received any mail regarding my last inquiry. They said I would get a call-back within 3 business days. It had now been 9 business days. I explained the situation again. I received the same rhetoric that they would only pay the contracted rate they had for each drug. Again, I explain that I would have happily given the pharmacy my…

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Medical Monday- Changing Insurance Carriers

April 3, 2017 / 0 Comments

I find it important to share the trials and struggles of dealing with insurance companies and doctor bills. It can become a job in and of itself. For those in chronic pain, we only have so much energy to deal with this crap. I feel like they assume you’re not going to fight them and just give in. While I don’t want to spend endless hours on the phone, I am not going to be taken advantage of or stuck in the red tape. I’m sharing a two-party series on an insurance issue from 2015 that took 10 months to resolve. Just know that you are not the only one who gets bogged down in the bureaucracy.

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Katie Golden

Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.

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