INvisible Project

Photo Friday – Miles for Migraine Philadelphia

October 13, 2017 / 0 Comments

On Saturday, Oct 7, 2017, I participated in the Miles for Migraine event in Philly. Besides volunteering, I also brought the INvisible Project: Migraine Edition display with me to share the stories of those living with migraine disease. Little did I know that I would play hostess and run around with a microphone, interviewing participants on Facebook Live. It was a blast and also so incredible to meet others who understand each other. Here are some of my favorite pictures and links to the interview sessions (including video of the fastest I have ever run in my life!).   I want to recognize Runnin’ for Research that has held multiple race events this year to raise funds for migraine, headache, and cluster research. Additionally, both organizations have a “Virtual Race” option that can be done any time of the year. And thanks to my friends at Migraine.com for coming out…

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Photo Friday – Pain Week 2017

September 8, 2017 / 1 Comment

Pain Week is an annual conference focused on pain for the health care professionals who see patients who have a multitude of disorders and diseases. Doctors, pharmacologists, nurse practitioners, and those who offer complementary and alternative therapies all gather to attend seminars on the latest research in this field. I was there to represent US Pain Foundation and the INvisible Project. Spending time in the exhibition hall, I had interesting conversations with attendees about what they do in the pain community and how the various projects of US Pain could be a good resource to offer their patients.           During the 5-day conference, topics included ketamine, pain management coaching, regulatory issues, prescribing guidelines, biofeedback, virtual reality for pain management, microbiome, patient-centered practices and addiction. Disease specific seminars included erythromelalgia, arachnoiditis, occipital neuralgia, neuropathy, osteoarthritis and fibromyalgia. For the first time, the American Headache Society hosted an…

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Migraine Takes. But It Also Gives Sometimes.

July 12, 2017 / 0 Comments

My eyes were full of tears so many times in June for different reasons. Sometimes because of my own pain, but more often due to the stories of others that I have had the privileged to know. I’ve seen the despair of a life with migraine disease, robbing those of the future they had envisioned. Lost with what to do next. I got messages from many who were preparing to enter the hospital, full of questions and anxiety over the unknown. Upon hearing of a suicide in the cluster community, I felt utter despair for the family and a sense my own powerlessness. Migraine takes. I also saw people connect in different ways in the name of migraine awareness. My Facebook feed was inundated with people (and dogs) wearing #shadesformigraine or #haturdayforheadaches. I watched the brightest minds in headache medicine present their research, making me hopeful for the future. I…

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The INvisible Project – Migraine Edition

June 28, 2017 / 0 Comments

You may have seen me post about the Invisible Project, but I don’t think I’ve taken the time to explain it. It’s a magazine that highlights the lives of those LIVING with chronic pain and tells their stories, emphasizing pictures from their personal archives. The main purpose is to make the invisible more visible. The INvisible Project is the flagship program of the US Pain Foundation (go “Like” their page!). Nicole Hemmenway, VP of US Pain and Director of the Invisible Project, conceived this project with the goal of showing the real impact of chronic illness, which is not always pretty. Previous editions covered multiple chronic illnesses. This year was the first time a disease-specific magazine was produced, focusing on migraine. It launched in early June, just in time for Migraine & Headache Awareness Month. The Migraine Edition Nicole and editor Jenni Grover, of Chronic Babe, approached me late last…

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Handy Guide to All Things Migraine & Headache Awareness Month

June 7, 2017 / 0 Comments

Curated by Michelle Tracy and Katie M. Golden June is Migraine and Headache Awareness Month #MHAM. There is so much excitement in the air about many great campaigns, it can get a little confusing. The Migraine Warrior, Michelle Tracy, @chedeco, and Katie M. Golden, @GoldenGraine, have teamed up to break it down for you. Whether you want to just share a post, blog about a given topic, take photos of you in migraine-related apparel, attend an in-person event or participate in a walk or run, there is something for everyone. Follow the hyperlinks for more information on each initiative. It’s kind of like “choose your own adventure!” Share and Make Aware INvisible Project – Migraine Edition– The INvisible Project is a magazine sponsored by the US Pain Foundation. It highlights the personal strength, character, and courage of those living with invisible illnesses by sharing personal stories and photos. The ultimate…

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Katie Golden

Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.

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