Migraine

Questions on CGRP

Real News on CGRP Access

May 22, 2018 / 0 Comments

Aimovig, the first CGRP inhibitor drug, was approved by the FDA on May 17, 2018. This is extremely exciting news, but there are a lot of questions swirling around as many of us are anxious to try this new medicine. For the most up-to-date information about Aimovig visit Aimovig.com. The site includes Frequently Asked Questions, information on how the drug works, safety information AND information about a co-pay assistance program and a two-month free trial program. Worried About Access To CGRP Inhibitors? Many patient groups are working to address anticipated access issues to this new medication, including how to get a prescription from your doctor and to how to get your insurance company to cover it. However, these questions won’t be answered overnight.  You are not alone and you deserve access to care that is appropriate for the disease you have. The information below may answer some of your immediate questions, guide…

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I Have to Honor Your Pain and You Have to Honor Mine

December 11, 2017 / 0 Comments

I had the opportunity to sit down with author, Ashley Hattle who just wrote the book, Cluster Headaches: A Guide to Surviving One of the Most Painful Conditions Known to Man. Ashley has cluster headaches and I have migraine attacks. Neither of us truly know what the other person goes through, yet we found so many similarities. In the end all headache disease communities need to unite and support each other. A phrase that we both connect with is: I have to honor your pain and you have to honor mine. It’s that simple. It’s not a contest and we should always create a judgment free space! If you don’t experience cluster headaches or have been newly diagnosed, this is a great guide to understanding this disease. You can buy Ashley’s book on Amazon. Follow her on Facebook @Ashley S. Hattle – Author, Writer & Photographer. Ashley also hosts a…

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Migraine Patient Input for ICER Report – My Submission

November 28, 2017 / 0 Comments

Introduction I wanted to share my response to the ICER patient input questions. I definitely went into a lot of detail. Please do not feel you need write a book. The questions that are the most important to focus on are #1, #2, #4, #5, & #7. It’s ok to leave questions blank. To learn more about the Migraine Patient Open Input period and how ICER’s review will impact access to new CGRP medications, visit https://www.headachemigraineforum.org/advocacy/ The ICER form can be found here: https://icer-review.org/patient-guide-to-open-input/ This is our chance to be heard! But the deadline is this Thurs, Nov 30th at 5pm EST! If you want to share your responses, let me know and I’d be happy to post them there! ____________________________________________________ On which ICER report are you providing input? Erenumab for Migraine Organization (if applicable): Patient Briefly describe your disease experience, including your diagnosis, treatments you’ve used, etc. Be as…

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Embody Empathy This Pain Awareness Month

September 13, 2017 / 0 Comments

Do you embody empathy when you cross paths with others? The homeless person in the subway station carrying a backpack and all of his worldly possessions in a shopping cart. The mother with a screaming kid in the grocery store. The woman who parked in the handicapped space, but walked into the store unassisted. We’ve all seen situations like this and likely judged those people. Why can’t the homeless man go to a shelter and get a job? Why isn’t that mother doing anything about the temper tantrum her four-year-old is having? That woman must be abusing the handicapped system by parking when there’s clearly nothing wrong with her. How often do you think about walking in their shoes instead of judging? If you talked to each one, you may understand that the mother in the grocery store has chronic migraine and is so exhausted that she barely had the…

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How Do YOU #MoveAgainstMigraine?

July 16, 2017 / 0 Comments

How do YOU #MoveAgainstMigraine? Yoga is my way to #MoveAgainstMigraine. It took me years to build up the stamina to be able to go back to a practice I had started years before becoming chronic. Yoga has helped me connect to my body and learn how to listen to what it is trying to tell me. The breathing techniques help me to remain calmer during rough attacks. But IT IS NOT EASY! I can go weeks or months without stepping onto my mat. And sometimes I push myself too hard and can cause my pain levels to increase. I’ve learned to modify poses and know when to call it quits. The American Migraine Foundation has a campaign called “Move Against Migraine.” I challenge you to share how you #MoveAgainstMigraine. Could be painting, sharing articles, joining a support group. Be proud of what you are able to accomplish despite having migraine…

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My Favorite Articles as a Migraine Writer – Part Four

June 26, 2017 / 0 Comments

In less than 4 years, I’ve written over 100 articles sharing my world with chronic migraine disease & pain. For migraine awareness month, here are my favs. June is Migraine and Headache Awareness Month, so I thought I’d share with you the ones that have meant the most to me. Images of an Invisible Illness Disability Income Preparation Guide Botox Basics

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My Favorite Articles as a Migraine Writer- Part Three

June 19, 2017 / 0 Comments

In less than 4 years, I’ve written over 100 articles sharing my world with chronic migraine disease & pain. For migraine awareness month, here are my favs. June is Migraine and Headache Awareness Month, so I thought I’d share with you the ones that have meant the most to me. Bellamy Young- Out of the Darkness and Into the Light Former NFL Star, Ben Utecht, Talks TBIs Chronic Pain Finds a Place in Holllywood with “Cake”  

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My Favorite Articles as a Migraine Writer – Part Two

June 12, 2017 / 0 Comments

In less than 4 years, I’ve written over 100 articles sharing my world with chronic migraine disease & pain. For migraine awareness month, here are my favs. June is Migraine and Headache Awareness Month, so I thought I’d share with you the ones that have meant the most to me. The Kid Conundrum Social Media and Migraine Stigma 10 Things I’m an Expert On Professional Patient

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My Favorite Articles as a Migraine Writer – Part One

June 5, 2017 / 0 Comments

In less than 4 years, I’ve written over 100 articles sharing my world with chronic migraine disease & pain. For migraine awareness month, here are my favs. June is Migraine and Headache Awareness Month, so I thought I’d share with you the ones that have meant the most to me. Help (Not) Wanted Roommates (Not) Wanted You Are Beautifully Made  

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What Type of Migraine Is Your Child Experiencing? From the Diamond Clinic

April 17, 2017 / 0 Comments

My first migraine attack happened at age five, a mere child. In a way I was lucky that I experienced aura with mine. That one symptom made it easier to diagnose and treat. However, many children have migraine and their symptoms go unrecognized.

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Katie Golden

Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.

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