Stigma

My 2nd ICER Submission for CGRP Review

May 8, 2018 / 0 Comments

To find out more about ICER (Institute for Clinical & Economic Review) watch this video or check out the Patient Input Guide. This is my submission to ICER about the importance their review of new CGRP inhibitor drugs will have on my life and our entire community. -Katie ICER OPEN COMMENT PERIOD ON CGRP INHIBITORS FOR MIGRAINE I had my first migraine attack with aura at age five. My vision was obstructed by a sparkling crescent moon shape. Within 20 minutes it had disappeared. Next it felt like someone was pounding a nail into my skull, over and over again. My parents held me in their arms for hours as I screamed in pain. I became dehydrated from crying, only making the searing pain in my head worse. The daylight streaming in from the window felt like more daggers. After six hours of torture, I vomited until my stomach was…

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Celebrating Scott’s Sobriety

January 8, 2018 / 0 Comments

Addiction is a disease. It affects the addict as well as their family and friends. Those with an addiction, whether to alcohol, drugs, or other vices, will always face these demons. As much as those who love the addict want to help, it is the addict who must be willing to face the disease and accept that they are powerless over their addictions. Today my dear friend Rachael and her family are celebrating her brother Scott’s one year of sobriety. This is a monumental accomplishment, and I am elated for him. Though addiction, unlike many other diseases, cannot be cured, addicts can live in recovery, leading joyful and fulfilling lives. Simultaneously, the addict’s mantra, “one day at a time,” still rings true. While this is a major accomplishment, Scott will need to continue to choose sobriety each and every day in the face of addiction. A few months ago, Rachael…

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Migraine Patient Input for ICER Report – My Submission

November 28, 2017 / 0 Comments

Introduction I wanted to share my response to the ICER patient input questions. I definitely went into a lot of detail. Please do not feel you need write a book. The questions that are the most important to focus on are #1, #2, #4, #5, & #7. It’s ok to leave questions blank. To learn more about the Migraine Patient Open Input period and how ICER’s review will impact access to new CGRP medications, visit https://www.headachemigraineforum.org/advocacy/ The ICER form can be found here: https://icer-review.org/patient-guide-to-open-input/ This is our chance to be heard! But the deadline is this Thurs, Nov 30th at 5pm EST! If you want to share your responses, let me know and I’d be happy to post them there! ____________________________________________________ On which ICER report are you providing input? Erenumab for Migraine Organization (if applicable): Patient Briefly describe your disease experience, including your diagnosis, treatments you’ve used, etc. Be as…

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Why Being “Disabled” is a Full-Time Job

July 26, 2017 / 3 Comments

*************************SEEKING APPLICANTS************************* Job Title Chief Medical Officer of Personal Health Affairs (AKA Social Security Disability Beneficiary) Job Description Full-time position, flexible hours. Prerequisite: Ideal candidate would have a background in all of the following areas: analytics, accounting, patient advocacy, medical billing, insurance underwriting, legalese, pharmacology, healthcare administration, Social Security Disability, Medicare & Medicaid. Preference for those with M.D., Ph.D., CPA, RN, NP or Esq. behind their name. Skills: The ideal candidate would be well organized, exhibit patience, possess a friendly phone manner, anticipate problems, show initiative, diligent in finding correct answers and keep meticulous notes. Job Duties May Include: Schedule, prep and arrange transportation for 1-3 doctors’ visits per month. To include compiling a list of questions, a list of medications, changes in symptoms and provide medical records from other healthcare providers Interpret insurance policies and medical billing codes Reconcile medical bills Track payments toward deductibles Inquire about incorrect medical…

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My Favorite Articles as a Migraine Writer- Part Three

June 19, 2017 / 0 Comments

In less than 4 years, I’ve written over 100 articles sharing my world with chronic migraine disease & pain. For migraine awareness month, here are my favs. June is Migraine and Headache Awareness Month, so I thought I’d share with you the ones that have meant the most to me. Bellamy Young- Out of the Darkness and Into the Light Former NFL Star, Ben Utecht, Talks TBIs Chronic Pain Finds a Place in Holllywood with “Cake”  

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Medical Monday- The Fire of CRPS/ RSD

April 24, 2017 / 0 Comments

Golden Graine is not just for those living with chronic migraine, it’s for anyone dealing with chronic pain. We are all in the same boat. Feeling misunderstood, wanting others to take the time to listen. For this Medical Monday, I want to talk about a condition called Complex Regional Pain Syndrome (CRPS) or Reflex Sympathetic Dystrophy (RSD). These two terms are often used interchangeably.

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Advocate on the Loose!

April 5, 2017 / 0 Comments

I’m on a plane home to LA reflecting on the last three weeks I spent on the east coast. Several opportunities came my way and of course it all happened at the same time! I am grateful I was asked to be part of events focused on community building, advocacy, education and collaboration.

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Katie Golden

Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.

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