US Pain Foundation

Questions on CGRP

Real News on CGRP Access

May 22, 2018 / 0 Comments

Aimovig, the first CGRP inhibitor drug, was approved by the FDA on May 17, 2018. This is extremely exciting news, but there are a lot of questions swirling around as many of us are anxious to try this new medicine. For the most up-to-date information about Aimovig visit Aimovig.com. The site includes Frequently Asked Questions, information on how the drug works, safety information AND information about a co-pay assistance program and a two-month free trial program. Worried About Access To CGRP Inhibitors? Many patient groups are working to address anticipated access issues to this new medication, including how to get a prescription from your doctor and to how to get your insurance company to cover it. However, these questions won’t be answered overnight.  You are not alone and you deserve access to care that is appropriate for the disease you have. The information below may answer some of your immediate questions, guide…

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Embody Empathy This Pain Awareness Month

September 13, 2017 / 0 Comments

Do you embody empathy when you cross paths with others? The homeless person in the subway station carrying a backpack and all of his worldly possessions in a shopping cart. The mother with a screaming kid in the grocery store. The woman who parked in the handicapped space, but walked into the store unassisted. We’ve all seen situations like this and likely judged those people. Why can’t the homeless man go to a shelter and get a job? Why isn’t that mother doing anything about the temper tantrum her four-year-old is having? That woman must be abusing the handicapped system by parking when there’s clearly nothing wrong with her. How often do you think about walking in their shoes instead of judging? If you talked to each one, you may understand that the mother in the grocery store has chronic migraine and is so exhausted that she barely had the…

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Photo Friday – Pain Week 2017

September 8, 2017 / 1 Comment

Pain Week is an annual conference focused on pain for the health care professionals who see patients who have a multitude of disorders and diseases. Doctors, pharmacologists, nurse practitioners, and those who offer complementary and alternative therapies all gather to attend seminars on the latest research in this field. I was there to represent US Pain Foundation and the INvisible Project. Spending time in the exhibition hall, I had interesting conversations with attendees about what they do in the pain community and how the various projects of US Pain could be a good resource to offer their patients.           During the 5-day conference, topics included ketamine, pain management coaching, regulatory issues, prescribing guidelines, biofeedback, virtual reality for pain management, microbiome, patient-centered practices and addiction. Disease specific seminars included erythromelalgia, arachnoiditis, occipital neuralgia, neuropathy, osteoarthritis and fibromyalgia. For the first time, the American Headache Society hosted an…

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Migraine Takes. But It Also Gives Sometimes.

July 12, 2017 / 0 Comments

My eyes were full of tears so many times in June for different reasons. Sometimes because of my own pain, but more often due to the stories of others that I have had the privileged to know. I’ve seen the despair of a life with migraine disease, robbing those of the future they had envisioned. Lost with what to do next. I got messages from many who were preparing to enter the hospital, full of questions and anxiety over the unknown. Upon hearing of a suicide in the cluster community, I felt utter despair for the family and a sense my own powerlessness. Migraine takes. I also saw people connect in different ways in the name of migraine awareness. My Facebook feed was inundated with people (and dogs) wearing #shadesformigraine or #haturdayforheadaches. I watched the brightest minds in headache medicine present their research, making me hopeful for the future. I…

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The INvisible Project – Migraine Edition

June 28, 2017 / 0 Comments

You may have seen me post about the Invisible Project, but I don’t think I’ve taken the time to explain it. It’s a magazine that highlights the lives of those LIVING with chronic pain and tells their stories, emphasizing pictures from their personal archives. The main purpose is to make the invisible more visible. The INvisible Project is the flagship program of the US Pain Foundation (go “Like” their page!). Nicole Hemmenway, VP of US Pain and Director of the Invisible Project, conceived this project with the goal of showing the real impact of chronic illness, which is not always pretty. Previous editions covered multiple chronic illnesses. This year was the first time a disease-specific magazine was produced, focusing on migraine. It launched in early June, just in time for Migraine & Headache Awareness Month. The Migraine Edition Nicole and editor Jenni Grover, of Chronic Babe, approached me late last…

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Handy Guide to All Things Migraine & Headache Awareness Month

June 7, 2017 / 0 Comments

Curated by Michelle Tracy and Katie M. Golden June is Migraine and Headache Awareness Month #MHAM. There is so much excitement in the air about many great campaigns, it can get a little confusing. The Migraine Warrior, Michelle Tracy, @chedeco, and Katie M. Golden, @GoldenGraine, have teamed up to break it down for you. Whether you want to just share a post, blog about a given topic, take photos of you in migraine-related apparel, attend an in-person event or participate in a walk or run, there is something for everyone. Follow the hyperlinks for more information on each initiative. It’s kind of like “choose your own adventure!” Share and Make Aware INvisible Project – Migraine Edition– The INvisible Project is a magazine sponsored by the US Pain Foundation. It highlights the personal strength, character, and courage of those living with invisible illnesses by sharing personal stories and photos. The ultimate…

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Medical Monday- The Fire of CRPS/ RSD

April 24, 2017 / 0 Comments

Golden Graine is not just for those living with chronic migraine, it’s for anyone dealing with chronic pain. We are all in the same boat. Feeling misunderstood, wanting others to take the time to listen. For this Medical Monday, I want to talk about a condition called Complex Regional Pain Syndrome (CRPS) or Reflex Sympathetic Dystrophy (RSD). These two terms are often used interchangeably.

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Advocate on the Loose!

April 5, 2017 / 0 Comments

I’m on a plane home to LA reflecting on the last three weeks I spent on the east coast. Several opportunities came my way and of course it all happened at the same time! I am grateful I was asked to be part of events focused on community building, advocacy, education and collaboration.

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Photo Friday- Grandpa’s Hands

January 29, 2017 / 0 Comments

This picture is being sold as part of a fundraising effort between the US PainFoundation and 540WMain, a non-profit run by my dear friend Calvin Eaton in Rochester, NY. Learn more about this project and how to purchase artwork by those who have chronic pain conditions.

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Photo Fridays- Never Let Your Pain Go To Waste

November 25, 2016 / 0 Comments

This picture is being sold as part of a fundraising effort between the US Pain Foundation and 540WMain, a non-profit run by my dear friend Calvin Eaton in Rochester, NY. Learn more about this project and how to purchase artwork by those who have chronic pain conditions.

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Katie Golden

Katie is a professional patient, writer for Migraine.com, US Pain Ambassador, patient advocate, speaker, and freelance writer.

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